Identifying opportunities for earlier diagnosis of idiopathic pulmonary fibrosis in routine care in the uk: a retrospective clinical cohort study

Lead Investigator

Luca Richeldi, National Institute for Health Research, Southampton Respiratory Biomedical Research Unit, University of Southampton, Southampton, UK

Research Team

David Price: Professor of Primary Care Respiratory Medicine, University of Aberdeen, Aberdeen, UK; Owner of Optimum Patient Care Ltd and REG Chairman

Carlo Vancheri: “Regional Centre for Rare Lung Diseases”, Department of Clinical and Experimental Medicine, University of Catania, Catania, Italy

Christopher Ryerson: Department of Medicine, University of British Columbia, Vancouver, British Columbia, Canada; Department of Medicine, University of California San Francisco, San Francisco, California, USA.

Ian Glaspole: Department of Allergy, Immunology and Respiratory Medicine, Alfred Hospital, Melbourne, Australia

Ganesh Ragu: Division of Pulmonary & Critical Care Medicine, University of Washington, Washington, USA

Kevin Flaherty: Department of Medicine, Division of Pulmonary and Critical Care Medicine, University of Michigan Medical School, Ann Arbor, MI, USA

Vincent Cottin: National Reference Centre for Rare Pulmonary Diseases, Department of Respiratory Medicine, Claude Bernard Lyon University, Lyon, France

Toby Maher: National Institute for Health Research (NIHR) Clinician Scientist and Physician on the Interstitial Lung Disease Unit, Royal Brompton Hospital

Andrew Wilson: Norwich Medical School, University of East Anglia, Norwich, UK

Alan Kaplan: Family Physician Airways Group of Canada, Richmond Hill, Ontario, Canada

Martin Kolb: Department of Medicine, Pathology & Molecular Medicine, McMaster University, Hamilton, Ontario, Canada

Alison Chisholm: Chief Scientific Officer of REG, Cambridge, UK

Status: Active

Support:

Registration:

Short Description

With a view to identifying potential opportunities for earlier referral to specialists and (ultimately) earlier diagnosis of IPF, this study aims to:

  1. Evaluate patients’ patterns of HRU in the years preceding their IPF diagnosis.
  2. Characterise the clinical features of patients at the time of their IPF diagnosis

Documents and Publications

  • Protocol
  • Abstracts
  • Presentations
  • Final Publications
  • Additional Material