Research Review Committee

[vc_row css=”.vc_custom_1447161778752{margin: 10px !important;border-width: 20px !important;padding: 10px !important;background-color: #ffffff !important;}”]The Research Review Committee plays a vital role in identifying and prioritising real-life research needs in order to source and allocate commensurate funding.

Research ideas are welcomed from all REG collaborators. These suggestions will be anonymously reviewed and prioritised by the Committee.

Accreditation Review Committee

Information to follow

Initiatives Review Committee

Information to follow

Useful Links

Medical Glossary (including definition coding definitions): developed by the WHO Collaborating Centre for Pharmaceutical Pricing and Reimbursement Policies

Research Groups

  • Concert-Clinical Effectiveness Research (CONCERT-Cer): The COPD Outcomes-based Network for Clinical Effectiveness and Research Translation (CONCERT; https://www.kpchr.org/concert/) proposes to develop a research infrastructure that will accelerate the development and conduct of multi-institutional, multi-disciplinary studies that are responsive to the COPD CER priorities of stakeholders.
  • COPD Gene Group: The COPDGene® Study is one of the largest studies ever to investigate the underlying genetic factors of Chronic Obstructive Pulmonary Disease or COPD.
  • Research in Real Life Ltd:Research in Real Life (RiRL) is an independent, research-driven organisation established to cultivate initiatives, provide evidence and drive quality standards within the growing field of real-life, pragmatic research.
  • GA2LEN:European Allergy and Asthma European Network: a Network of Excellence of the leading European clinical and research facilities in the field of allergology and asthma, associated with the European Academy of Allergy and Clinical Immunology (EAACI) and the organisation representing European patients with allergies and asthma (EFA). Started under the European Union Sixth Framework Programme for Research, GA²LEN has become a model project in Europe. GA²LEN addresses the growing public health concern of allergic diseases.

Journals

Guidelines

Institutions and Organisations

 

Study and Trial Registration

Why is this important?

As the All Trials Registered | All Results Reported campaign warns:

Around half of all clinical trials have not been published; some trials have not even been registered. If action is not taken urgently, information on what was done and what was found in trials could be lost forever, leading to bad treatment decisions, missed opportunities for good medicine, and trials being repeated unnecessarily.

The All Trials campaign was launched in January 2013 as a joint initiative between Bad ScienceSense About ScienceBMJJames Lind Initiative and the Centre for Evidence -based Medicine. It calls on responsible bodies to ensure that all trials past and present, for all treatments, are registered; and that the full methods and the results are reported.

REG supports the All Trials Registered | All Results Reported campaign  and believes these standards should be applied to real-life studies (observational studies using clinical and administrative databases as well as pragmatic trials).

As a European Network of Centres for Pharmacoepidemiology and Pharmacovigilance (ENCePP®) network, REG registers its own funded research and promotes use of the ENCePP E-registry, which aims to:

  • Increase transparency
  • Reduce publication bias
  • Promote information exchange
  • Facilitate collaborations within the scientific community.
  • Facilitate optimal use of pharmacoepidemiology and pharmacovigilance expertise by preventing unnecessary duplication of research
  • Increase transparency
  • Reduce publication bias
  • Promote information exchange
  • Facilitate collaborations within the scientific community.
  • Facilitate optimal use of pharmacoepidemiology and pharmacovigilance expertise by preventing unnecessary duplication of research.

Applying this form of planning and registration to real-life studies means they will mirror (more closely) the registration requirements asked of prospective randomised clinical trials and should help shake-off connotations associated with “mining” real-life data retrospectively to find outcomes of significance. The result is the delivery of more ethically-transparent and well-planned studies.

Other existing trial registries

A number of trial registries exist, primarily designed to facilitate the registration of classical randomised controlled trials:

width=”1/3″ css=”.vc_custom_1447169524645{margin: 5px !important;border-width: 5px !important;padding: 5px !important;background-color: #ffffff !important;}”]

Journal of Asthma and Clinical Immunology. Publisher: the American Academy of Allergy, Asthma, and Immunology

 

width=”1/4″] width=”1/4″] width=”1/4″][vc_wp_posts number=”5″ show_date=”1″]